Retinitis Pigmentosa, Advocacy & Assistive Tech with Zoe

What does it mean to grow up with changing vision—and then turn that experience into advocacy for the next generation? 🎙️👁️In this episode of The EKO Lens, host Dr. Kenisha sits down with Zoe, Vice President of the American Council of the Blind Next Generation (ACB Next Generation), for a conversation about living with retinitis pigmentosa (RP), finding community, and advocating for a more accessible future for people who are blind or have low vision.Zoe shares her personal journey, including not receiving her diagnosis until 2020 and how her vision has changed over time. She and Dr. Coon explore what it means to navigate education and everyday life with vision loss, the importance of disability advocacy and community, and the role assistive technology can play in creating greater independence and access.They also look ahead at the future of accessible technology and innovation—and why the voices and lived experiences of blind and low vision people need to be part of designing that future.🔎 In this episode: • Zoe’s journey with retinitis pigmentosa • Blindness and low vision advocacy • The American Council of the Blind and ACB Next Generation • Assistive technology for blind and low vision users • Accessibility in education and daily life • Finding community after vision loss • Innovation and the future of accessible technology • Why lived experience matters in accessibility and inclusive design