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Podcast Episode

Let's Talk MND - "We should be dead"

Let's Talk MND··22 September 2026·1h 4m

About this episode

What happens when you live with MND far longer than expected?In this special episode, Phil Camden, John Hanley, Matt Stickland and Peter Chambers come together to share their experiences of living with MND over many years. They talk openly about what keeps them going, what they’ve learned along the way and the different ways they’ve adapted to the challenges MND has brought into their lives.We explore the importance of mindset, staying connected, finding support and making the most of each day. There’s honesty, humour and plenty of insight as they reflect on the choices, routines and sources of strength that have helped them continue moving forward.It’s an uplifting and thought-provoking conversation about hope, resilience and longevity — and about living, not just surviving, with MND.