Ep. 23: Erin's story & Nila, the app filling the gaps in menopause care

Erin Beattie spent twenty years bleeding through her clothes, flooding through overnight pads in a two-minute car ride, before anyone said the word endometriosis out loud. Then, in the middle of an 18-month wait to get diagnosed, she was found to have breast cancer — three surgeries in nineteen months, including a bilateral mastectomy and a total hysterectomy that finally revealed stage three endometriosis along the way. Now, almost a year into acute surgical menopause with almost no map for what she's going through, she's built Nila: an app born out of her own research spiral, designed for the other 23 hours a day when you're not in front of a doctor and don't want to fall down a Google rabbit hole. Amy and Erin get into what it's like to be dismissed for decades, why "having kids cures endometriosis" is a myth that keeps costing women years, and why the gaps in menopause research go a lot deeper than most people realize — especially for anyone who doesn't look like the woman on the pamphlet.Key Components: Twenty years of "flooding" before anyone said the word endometriosis: What finally made her doctor connect the dots — and why it took so long.A breast cancer diagnosis found completely by accident: How a routine pre-surgery scan for something unrelated changed the entire next two years of her life.The myth that having kids "cures" endometriosis, and why Erin spent nearly two more decades being told her symptoms couldn't be what she already suspected.Why she built her app, Nila, instead of waiting for the healthcare system to catch up: What she noticed was missing for anyone who doesn't fit the typical menopause picture."We then just live fine versus great and wonderful and blood-pant free. There's so much that we endure quietly."Check out Nila at hellonila.com Connect with Erin on LinkedIn Follow Nila on Instagram Get more information about endometriosis and adenoymyosis  👉 Click here to join the movement at downthereaware.org🩲 Subscribe, like, and share to show us you care!🤘 Podcast produced by Binge-Worthy Studio For informational and entertainment purposes only — not medical advice. We're here to get loud, not to play doctor.