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HomeRareAF - Advocacy and Facts
RareAF - Advocacy and Facts

RareAF - Advocacy and Facts

Active· last episode 16 days ago
Listen on Apple Podcasts
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~39 min episodes

About RareAF - Advocacy and Facts

RareAF – Advocacy and Facts brings real talk to the world of rare diseases. Each episode dives into life with rare and chronic conditions — breaking down the facts, the humanity behind specialty care and the advocacy still needed. Hosted by passionate voices from the rare disease community, Amanda Christian and Brian Rodgers. Whether you’re living rare, working in healthcare, or just curious, we’re here to keep it honest and hopeful. Supported by Heritage Specialty Pharmacy, it’s raw, it’s real, and it’s RareAF.

Language
English
Type
podcast

Episodes(15)

  1. 1

    From Surviving to Thriving: Morgan Barrett's CF Journey

    29 May59m
  2. 2

    Advocacy in Action with Laurie Gaulter, RN, BSN

    8 May27m
  3. 3

    Growing Up Rare: What Happens Next?

    20 Apr38m
  4. 4

    Living With Von Willebrand: Jackie’s Story

    31 Mar29m
  5. 5

    Finally Being Believed

    26 Mar44m
  6. 6

    Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part II

    19 Mar41m
  7. 7

    Seeing Women Fully: Addressing the Disparities in Bleeding Disorder Care - Part I

    12 Mar47m
  8. 8

    A Mom’s Story: Loving, Learning, and Living with Duchenne - Part II

    17 Feb51m

+7 more — listen on the platforms above

WHICHPODCAST

Discover your next favourite podcast. Search 40,000+ shows, take the quiz, or browse by category.

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