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HomeThe KCNA2 & Rare Epilepsy’s Podcast
The KCNA2 & Rare Epilepsy’s Podcast

The KCNA2 & Rare Epilepsy’s Podcast

Active· last episode 10 days ago
Listen on Apple Podcasts
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~34 min episodes

About The KCNA2 & Rare Epilepsy’s Podcast

Welcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it. Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare forms of epilepsy. You’ll hear stories, questions, and hopes from people who understand and are living with this disease. Our mission is to raise awareness, build connections and foster hope. This isn’t a science podcast (though you’ll learn a lot), our focus is on belonging and education. Together, we can move towards better treatments, clinical trials and ultimately, a cure.

Language
English
Type
podcast

Episodes(15)

  1. 1

    Genetic Testing in Rare Epilepsy: What Families Need to Know with Gillian Prinzing & Nancy Musarra

    4 Jun32m
  2. 2

    How Genomics Can Inform Medication Decisions in Rare Epilepsies with Drs. Gray & Musarra - Part 2

    28 May34m
  3. 3

    Epilepsy & Mental Health Are More Connected Than People Realize with Monica Lopez Morales

    21 May34m
  4. 4

    Rare Epilepsy and Genomic Testing Explained with Dr. Erika Gray and Dr. Nancy Musarra

    14 May40m
  5. 5

    Epilepsy Is More Than Seizures with Monica Lopez Morales and Dr. Nancy Musarra

    7 May23m
  6. 6

    Understanding KCNA2 Epilepsy with Researcher Dr. Ulrike (Uli') Hedrich-Klimosch & Dr. Nancy Musarra

    30 Apr35m
  7. 7

    What Does a Seizure Feel Like? Real Stories from Monica Lopez Morales and Dr. Nancy Musarra

    23 Apr44m
  8. 8

    What KCNA2 Parents Should Know About Neurologically Focused Chiropractic Care with Dr. Nate DeJong

    16 Apr46m

+7 more — listen on the platforms above

WHICHPODCAST

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