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HomeThe KCNA2 & Rare Epilepsy’s Podcast
The KCNA2 & Rare Epilepsy’s Podcast

The KCNA2 & Rare Epilepsy’s Podcast

Active· last episode 22 days ago
Listen on Apple Podcasts
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~34 min episodes

About The KCNA2 & Rare Epilepsy’s Podcast

Welcome to KCNA2 & Rare Epilepsy Podcast, a podcast created for the people living this journey and the people working to understand it. Each episode, hosted by Dr. Nancy Musarra, invites listeners into honest, generous, and sometimes vulnerable conversations with parents, researchers, clinicians, and board members to discuss the daily experiences of living with KCNA2, seizures, and other rare forms of epilepsy. You’ll hear stories, questions, and hopes from people who understand and are living with this disease. Our mission is to raise awareness, build connections and foster hope. This isn’t a science podcast (though you’ll learn a lot), our focus is on belonging and education. Together, we can move towards better treatments, clinical trials and ultimately, a cure.

Language
English
Type
podcast

Episodes(20)

  1. 1

    Genetic Testing for Epilepsy: What Happens After the Results? With Gillian Prinzing & Nancy Musarra

    16 Jul27m
  2. 2

    Why Some Nonprofits Grow While Others Burn Out With Loree Lipstein & Dr. Nancy Musarra

    16 Jul45m
  3. 3

    Janice Hrabak Shares Her Family’s KCNA2 Journey with Dr. Nancy Musarra

    16 Jul33m
  4. 4

    Her Fight Is My Fight: Sarah Tompkins on KCNA2 Epilepsy, Seizures & Motherhood

    16 Jul31m
  5. 5

    Living With KCNA2 Epilepsy: One Father’s Story of Seizures, Strength & Hope with Jeffrey Gomez

    16 Jul44m
  6. 6

    Genetic Testing in Rare Epilepsy: What Families Need to Know with Gillian Prinzing & Nancy Musarra

    4 Jun32m
  7. 7

    How Genomics Can Inform Medication Decisions in Rare Epilepsies with Drs. Gray & Musarra - Part 2

    28 May34m
  8. 8

    Epilepsy & Mental Health Are More Connected Than People Realize with Monica Lopez Morales

    21 May34m

+12 more — listen on the platforms above

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