As moms and caregivers of children with epilepsy, special needs, and complex medical needs, it can feel like there is always something that needs our attention.Doctors appointments. Therapies.…
When do you know it’s time to explore epilepsy surgery?This is a question I see come up again and again among parents of children with complex drug resistant epilepsy, and it’s one that my husband and…
When you’re parenting a child with epilepsy or complex medical needs, there can be so much to manage that your own feelings get pushed to the bottom of the list.The appointments. The medications. The…
There are so many things that nobody prepares you for when you become the parent of a child with a disability, complex medical needs, and mobility challenges.For our family, life changed significantly…
When you’re the mom of a child with epilepsy, special needs, or complex medical needs, it can feel like you’re never truly able to turn your brain off.You’re constantly watching, checking, monitoring,…
When I think back to the days and months following our daughter’s right hemispherectomy surgery, I want to give that woman, her husband and her kids HUGE hugs, because they did it. They survived what…
If your child has undergone a hemispherectomy, you already know that their needs can be incredibly unique—and those needs don’t disappear when they walk through the school doors. In fact, making sure…
As moms and caregivers, so much of our day revolves around planning, preparing, anticipating, and staying one step ahead.We manage medications, meals, appointments, school schedules, therapies,…
In today’s episode, I’m sharing an honest update on our family’s experience with the ketogenic diet for epilepsy—what went well, what was harder than we expected, and why we ultimately chose to…
The transition to kindergarten can feel overwhelming for any parent—but when your child has epilepsy, special needs, and a complex medical history, it feels like the weight of the world is on your…
